About CNETS
The association was formally registered on 9 April 2009 (ROS Number 2039/2009).
The founders of the association are Dr. Paul Ho, Lam Wei Choong, and William Claxton.
Founding members include local and foreign patients, and many prominent Carcinoid NETs
specialist physicians in Singapore.
The vision for establishing a network of regional support groups to help patients,
caregivers and physicians involved with carcinoid and
neuroendocrine tumors was first articulated by Maureen Coleman, co-founder and President
of the Carcinoid-NeuroEndocrine Tumour Society Canada, and Sandi Barkan, NAAPNET President,
at an international conference on Carcinoid and Neuroendocrine Tumors held
in Norfolk Virginia in September 2007. Their vision was dubbed 'CNETS without borders'.
CNETS Singapore was born of that vision, and works actively to coordinate with other
regional support groups.
Contacts for Carcinoid-NeuroEndocrine Tumour Society Canada and other support groups
can be found on our resources page.
The Constitution
Our constitution is drafted in accordance with guidelines established by
the Singapore Ministry of Home Affairs, Registry of Societies.
Our Objectives
- Promote better understanding of carcinoid and neuroendocrine cancer, a relatively
rare disease which is poorly understood and is often misdiagnosed.
- Promote awareness of targeted and biological therapies, which have shown great
promise in treating carcinoid and neuroendocrine cancer and which could potentially
lead to targeted and biological therapies for other cancers.
- Educate and support the community of patients, caregivers and physicians who deal
with carcinoid and neuroendocrine disease, in Singapore and throughout the Asia
Pacific region, for example by creating a regional directory of specialist physicians
and treatment centres.
- Deploy collaborative Internet technologies as a platform for the community of patients,
caregivers and physicians who deal with carcinoid and neuroendocrine disease to help
themselves and each other.
- Organise informational conferences, seminars, group discussions, and networking
opportunities for the benefit of patients, caregivers and the wider medical community,
in Singapore and throughout the Asia Pacific region.
- Coordinate with the relevant authorities to strengthen Singapore's capacity to
diagnose and treat carcinoid and neuroendocrine cancer, with the goal of establishing
Singapore as a centre-of-excellence in diagnosis and treatment of this rare disease.
- Develop affiliations with other international associations having similar objectives.
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About our Logo
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Physicists have Occam's Razor and IT Geeks have KISS. When multiple explanations are available for a
phenomenon, the simplest version is preferred. Medical school students are also taught to zoom in on the simplist
explanation with the saying: "when you hear hoofbeats, think horses, not zebras".
It is common in the carcinoid and neuroendocrine community to refer to patients (aka 'noids') as
zebras.
This is because they often experience years of misdiagnosis as Chron's or irritable bowel (IBS), before their
disease is properly identified. Sadly, for more than half of the patients, their cancer is already metastatic
at the time of diagnosis.
Thus our logo
(and the logo of many similar organisations) is a zebra. Our zebra was drawn by Celia Ng, on
8 September 2008.
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